I'm not sure if I have Raynauds. I haven't asked my doctors for their opinion but my hands and feet are always abnormally cold and very red. I've looked at pictures of hands with Raynaud's and they are always white or blue.
As far as the dryness from Sjogren's I have an extremely dry mouth with loss of taste but my eyes aren't as bad at this point. I have a lot of problems with my teeth, does anyone else?
Jules said:
I've developed Raynauds over the last year; it's getting worse but luckily as yet isn't painful. I'm really sensitive to cold- even eating some chilled food like fruit salad can set me off!
Gethealrhy2 said:
How many of you also have Raynaud's? I don't have that, although I am more sensitive to cold than I used to be (hands mostly). And my eyes do not tolerate bright lights anymore.
I know the symptoms can be confusing. Seems like it goes along without a diagnosis until all the pieces fit. I was on medications before, such as methotrexate. I took myself off of everything except Nexium and over coutner vitamins and mineral. I am wondering about lupus too. I have what look to me like a mind, butterfly rash. Not as bad as any pictures I have sen, but there is a distinct similarity. I do not test positive for it though.
Makes my head swim to think of each of you dealing with your issues. I just cannot afford to think too much about myself. I know I have thyroid nodules, but apparently do not have markers of the cancerous variety, so will probably not get further treatment, just monitoring. Have not seen the doctor yet. Have bone spurs in my neck and that bothers me quite a bit, but mostly just neck stiffness.
Hope you are all having a descent day, at least. :)
Roxie said:
I'm not sure if I have Raynauds. I haven't asked my doctors for their opinion but my hands and feet are always abnormally cold and very red. I've looked at pictures of hands with Raynaud's and they are always white or blue.
As far as the dryness from Sjogren's I have an extremely dry mouth with loss of taste but my eyes aren't as bad at this point. I have a lot of problems with my teeth, does anyone else?
Jules said:
I've developed Raynauds over the last year; it's getting worse but luckily as yet isn't painful. I'm really sensitive to cold- even eating some chilled food like fruit salad can set me off!
Gethealrhy2 said:
How many of you also have Raynaud's? I don't have that, although I am more sensitive to cold than I used to be (hands mostly). And my eyes do not tolerate bright lights anymore.
I HAVE DRY EYES , USE RESTASIS BID and ointment at night , along with mouth and seems like my intestional ( GI) tract is also very affected. lots of water Salagon tabs , all Biotene products as weel as food changes , kwwping uo with dental cleaning every 3-4 months. itis a full time job having SS , even eating and swalowingg is difficult. My symptoms started 20 yrs ago but the dr thought it was from all the chemo. anyway…yes dry eyes along with Blepharitis, what works GREAT for that is washing outeand eylids with Johnsons baby soap twice a day. I am also dealing wiht a R eye cataract…putting off that as long as possible, I hope this info helps a bit!
Thank-you and no worries about the typos. I am sorry you have had to go
through chemo. It is going to be a long process I think, of eliminating
this and that, before get a diagnosis of what type of autoimmune disorder I
have. Could be worse!
yes Sjogrens can take years , ( especially ) if you do not have RA or Lupus or etc etc. For me stress really exacerbates it though. I take an anxiety med prn. Hope we can chat again. Are you in any of the other cahts here? Is it an actual chat room, or the chat is just more back/forth msgs?
I am not in another chat room. I may have RA, but they are not sure. I have
some autoimmune disease, but doc doesn’t know for sure what it is. I tested
Ssa+ but a few years ago I had symptoms but was negative Ssa. I think that
is it (Ssa).
