Frustrated!

One thing we forgot is dental issues. I have had the experience that every tooth they drill on dies. I had several implants when I was younger that worked but in the last five years everything has failed…

I have found that Ultram also known as tramadol works for me. It requires a prescription. Some people can take it during the day, but I find it makes me too sleepy so I take one at night. I was having serious issues with nerve pain, no one is certain that this is actually coming from the sjogrens. I’m also trying turmeric with several antioxidant by supplement that has now really started to make me feel better. Was on Imuran then methotrexate. The later really messed up my liver enzymes. Stopped both now that these supplements are working. I still take plaquinel since it helps the fatigue. I am finding that this disease causes such varied symptoms in so many people. As a Healthcare provider for almost 40 years I never heard of this prior to my own diagnosis . It’s nice that we have a place to come together.

Hi, Everone,

I use Ayr gel for my nose to keep it moist during the night. You can also use Aquafor.

2akitalover

I forgot to mention earlier that yoga has helped with the pain.

2akitalover

you get more on disability than on early social security