first time writting.. I might be.. I don't know slow to get a hang of it but do find it hard to accept to be sick.
My fiancé dump me like a bag of rotten potatoes when we learned I was sick...
we had big nice projects together,
but he didn't want to slow down... for anybody..
he prefered to keep going for it with any other healthy women
he abandonned me a month after making me believe we would get married ( I guess he wanted to look like a hero and then realized what it really meant to be one)
He actually said he "couldn't wait for me to get better" 24h after the clinic called (by mistake) telling me they had my test result (for lymphoma) but they couldn't tell me on the phone and gave me an appointment. It was a (nerve racking) mistake and in the end it was negative, but the man I loved so deeply had already run off and I had cried like never before in my entire life ...in a twisted way I guess it's almost a blessing to have so much tears when you have Sjogren!
That was 6 months ago exactly and I'm still not over it.
but enough whining for now...
Like most of you, I have been prescribe plaquenil (and anti inflammatory for articulations) But I haven't started taking it and I do feel a lot better and less tired since summer arrived. The pain (articulation) is also gone... but i haven't done anything special really.
From what I understand plaquenil doesn't slow the diseased, so whether I take it or not it won't really change anything in the long run... but I might be wrong, I'm still new to this ******* condition (and obviously angry!)
What do you think and what do you know, from your own experience, is it important that I take it as soon as possible? (my rhumy and family Dr didn't convinced me yet, especially since I started feeling better without it..)
Thank you for taking the time to read this,
I might be inapproriate or negative... I'm sorry for that
I try to show strenght with friends (not to annoy them) and family (not to hurt them) but the truth is that I feel so scared and alone in this.
I sure wish everyone here the best,
sending lot's of love and good vibes to you all,