Hi everyone I am new to this site, and am encouraged to have support..I was diagnosed with sjogrens about 7 yrs ago. But for 15 yrs severe migraines, fibromyalgia, chronic fatigue, poor memory and concentration. I take prophalactic meds for migraines (a good mth 5-6, bad mth 12-13)...when I was on no meds I had migraine everyday...all of this has really dominated my life, as I can not be active (can't be in the heat, can't be in the cold), physical activity usually makes me sick with migraine and fibro pain...im am not able to work outside the home. Does anyone else suffer these symptons???
Hi I haven’t ben diagnosed yet but we have got to suspected SS due to headaches and migraines. Spent some time in hospital last month having a lumbar puncture and the four neurologists I saw did not this SS would cause them. I think it is.
I have had visual migraines for 8 years. I am on Prednisone, 10 MG, now prescribed by my RA doctor. Today, I am having a bad migraine and have been lying down most of the day. I was on a med for my headache but had to quit when taking the prednisone. My head feels like it is swimming most of the time. I was diagnosed in 2013 with Sjorgens, but wasn't put on meds for it until my placelet count got to 60. Like you, I can't be in the heat or cold. I work outside for 10-15 minutes and come back inside for an hour, etc. I have another appointment in Oct. with my RA doctor.
Hello ,nice to meet you.....yes migraines are the absolute worse symptoms of my sjogrens, that and fibromyalgia...I have severe muscular pain with the migraines, severe chronic fatigue...I spend slot of time in the house. Are you on the prednisone for rheumatoid arthritis or for the headaches????
Aunt J said:
I have had visual migraines for 8 years. I am on Prednisone, 10 MG, now prescribed by my RA doctor. Today, I am having a bad migraine and have been lying down most of the day. I was on a med for my headache but had to quit when taking the prednisone. My head feels like it is swimming most of the time. I was diagnosed in 2013 with Sjorgens, but wasn't put on meds for it until my placelet count got to 60. Like you, I can't be in the heat or cold. I work outside for 10-15 minutes and come back inside for an hour, etc. I have another appointment in Oct. with my RA doctor.
Hello....did they do blood work to test for the antibodies that can diagnose sjogrens??? With the disease, I have dry eyes and mouth, severe migraines 6-13 a month (and that's on meds to prevent migraines), fibromyalgia with severe muscular pain and tension..I spent most time in the house with these headaches, not able to do normal activities that others do...Imitrex helps migraines, but all the symptoms compounded together has severely altered my life...I hope this helps, and that you will find the cause of your headaches
Emma said:
Hi I haven't ben diagnosed yet but we have got to suspected SS due to headaches and migraines. Spent some time in hospital last month having a lumbar puncture and the four neurologists I saw did not this SS would cause them. I think it is.
Wow, first off nice to meet you, secondly, have you been inside my head? Lol. Sounds all to familiar what you’ve described, and really until someone puts it in writing I at least never associated all of these problems you describe with any one thing, like sjogrens, or any other specific disease. But to answer yes, all of the above, with no answers, but lots of theories I guess
ihi in new as well im the same been with all the same probs for months now my dry eyes have gone systemic and not sure what that means so fatiqued foe days i was so active got to plan my tasks out maggie may
maggie may said:
ihi in new as well im the same been with all the same probs for months now my dry eyes have gone systemic and not sure what that means so fatiqued foe days i was so active got to plan my tasks out maggie may
newcreation said:....Hi Maggie.....chronic fatigue is one of my major symptoms. I have to force myself to do things...I could just sit or nap all day...feel like so exhausted, even after doing nothing......I've had plugs put in eyes to help with the dryness...also have chronic migraines, fibromyalgia, chronic muscle tension and pain....TMJ...anxiety.....dry mouth and nasal dryness......I will be very ill for days...then have days where I am almost pain free and then the cycle starts again.....what are all your symptoms?????
maggie may said:ihi in new as well im the same been with all the same probs for months now my dry eyes have gone systemic and not sure what that means so fatiqued foe days i was so active got to plan my tasks out maggie may
newcreation said: absolutely chronic headaches are symptom of Sjogrens....if eyes are really dry, I would have plugs put in...hope you get a good Dr to help you with all this...
Hello....did they do blood work to test for the antibodies that can diagnose sjogrens??? With the disease, I have dry eyes and mouth, severe migraines 6-13 a month (and that's on meds to prevent migraines), fibromyalgia with severe muscular pain and tension..I spent most time in the house with these headaches, not able to do normal activities that others do...Imitrex helps migraines, but all the symptoms compounded together has severely altered my life...I hope this helps, and that you will find the cause of your headaches
Emma said:Hi I haven't ben diagnosed yet but we have got to suspected SS due to headaches and migraines. Spent some time in hospital last month having a lumbar puncture and the four neurologists I saw did not this SS would cause them. I think it is.