Hi there, Mary-Jo
My name is Danielle and I am a Ben’s Friends intern. I wanted to take a moment to welcome you to Sjogren’s Syndrome Support.
I understand that you were diagnosed with Stevens-Johnson Syndrome in 2017. I am so sorry to hear that you have been impacted by such a range of uncomfortable symptoms. The comments you received from your previous doctor are truly disheartening. Dealing with an unsupportive health care provider is the last thing you need.
It sounds like you have a great support system at home, but we are here for that too. Please do not hesitate to create your own discussion posts by clicking the + New Topic tab. This is a great way to ask new questions, share your story, and connect with others. Please give us a shout if anything on the site seems confusing or unclear.
We are looking forward to getting to know you better!