Hi everyone! I see that we have SO many new members right now. I’m one of the moderators on this site, and would love to chat. If you have any questions or comments, jump right in. Feel free to just say hi. You can find out a bit more about me if you click on my profile. But basically I’m in my late forties, and I live in the Northeast US. I am diagnosed with Sjogren’s and psoriatic arthritis. I’m fairly stable with both, but I like chatting and helping people out.
I am new member. I am wife & caregiver to my husband with this awful disease. He does not have the typical issues as dry eyes & dry mouth.
His is awful. Can barely walk. In pain constantly. Bad swelling. Has poly neuropathy. All came on quickly 6 months ago.
Has had 4 appointments with rheumatology. Getting worse by the day. Meds are not working.
Right now awaiting prior authorization for shots or infusions. Everything takes so long.
He also has parkinson disease & congestive heart failure. But this is worst he has ever been. He is only up 2-3 hours a day.
Anything you can share with me to help him or myself .
Hi ruby! I’m so glad you can join us. The waiting is one of the roughest parts with dealing with an autoimmune condition. Sometimes we need to go through certain medications first before we can get to the heavier medications like biologics. It sounds like your husband’s case is more medically complicated as well because he has other conditions so he may not have the full range of medications available to him.
You can certainly do a search on the site for specific medications or specific symptoms. I know I’ve used that tool a lot. In the meantime just keep popping in and letting us know what we can do to help you and your husband out.
Honestly, I have never signed up for any kind of blog. So I have no idea what I am doing or what I should do.