Hi there, Terri
My name is Danielle and I am a Ben’s Friends intern. I wanted to take a moment to welcome you to Sjogren’s Syndrome Support.
It sounds like you have been through more than enough health related issues. I am happy to hear that your neurologist connected the dots and arrived to a diagnosis. I wonder how you are finding your current methods of treatment- Plaquenil and Gabapentin are discussed quite often in this community.
How are you managing on the site so far? I can see that you have already been posting, which is terrific! We are happy to have you here.
Hope to hear from you soon,
Hi Danielle. Thanks for the welcome.
It has truly been a journey to get a diagnosis of SjS . But overall I think it was a lot quicker than a lot of people. It may have been easier because I tested positive for both ssa and ssb. Initially he was looking for MS. Dodged a bullet there, lol.
I am enjoying the site and I have learned a lot. Since I don’t know anyone else with this it is nice to not be alone!
You are certainly not alone!
I am glad you are enjoying the site so far. Hope you keep us updated on how you are doing… we are thinking about you!
Give me a shout if you have any questions or concerns.
Hi TerriAnn, I’m Lori
Where in Bama, roughly? I am in NY but am flying down there in a couple weeks to see family. Can’t wait. Its beautiful down there. We are in the Northwest corner of the state, not far from Red Bay, Miss.
Sorry you are dealing with SS, but welcome!
Thank you! I live in the east central part of Alabama close to the Ga line. Be prepared…It is hot down here! But you are right it is very beautiful. I am sorry we are both dealing with this but it creates a certain sisterhood, don’t you think! Hope you enjoy your trip to the south!
Yes, it does… especially since most of the population has no idea what it is. LOL
I am quite prepared and looking forward to being warm. I used to be down there more than I am these days but it always welcome compared to the crowded madness of Long Island.