I’m recently diagnosed and had never heard of SS prior to my lab follow up appointment with a new Rheumatologist. I also have TRAPS syndrome and she wanted to start fresh with new labs. For two+ years I’ve been taking Claritin in the morning and Benadryl at night for itchy eyes I thought was allergies. Ha!
I’ve noticed the last few months that anytime I wear eye makeup, my vision is cloudy the next day and by mid-afternoon I’m having trouble seeing the computer monitor clearly. I chalked it up to the make-up remover I was using (Neutrogena gentle wipes) but now I’m not so sure.
I use Neutrogena and/or Almay sensitive-eyes mascara but am wondering if there’s another brand that is more SS friendly?
I’m not someone who won’t go out of the house without make-up. In fact, I hardly ever wear it but I do like to “fancy up” for writing conferences and events now and then.
Sigh. I’ve never been big on makeup either. The rare times that I wore makeup though, it would typically be eye liner and possibly mascara. I’ve had my tear ducts plugged or cauterized for the last 8 years or so. And because I wound up having to have top and bottom done, it means that what tears I make overflow. So lots of eye wiping, and no eye makeup.
That’s interesting that you’re noticing a next day impact. Are you using any sort of lubricating eye drops? That may be the solution for you.
Hi there. This is my first post on this site! I’m just learning about Sjogren’s. I almost never wear makeup anymore, but when I do, it’s all natural as is the eye make up remover. But, I notice my vision is also cloudy the next day, though not as much as yours. I wasn’t diagnosed with SS the last time I wore makeup so never thought about it in those terms. Interesting . . .
I also notice you mention itchy eyes. Aside from my Sahara Desert eyes, mine are always itchy. Is that part of SS? I hadn’t noticed it was one of the possible symptoms.
Thanks much, and I hope you’re taking good care, best you can!
They certainly can be itchy. Same here, no eye makeup. I would just rub it away, because I have tear duct plugs, and that makes my tears overflow.
If you’re not familiar with how tear duct plugs work, tear ducts are where your tears will drain. The issues with Sjogren’s are both not enough tears and poor quality tears. With the plugs, the tears will at least stay on the surface of your eyes longer.
Thanks for explaining that to me! I knew, generally, about tear duct plugs, but not specifically. My mouth isn’t dry at all, but oh my goodness, my eyes!!! Just getting worse and worse.
I sure hope the TDP work for you - at least enough to make a difference.
