Join the research study for Sjogren’s Syndrome

Hi, Everyone,

Our friends at Rare Patient Voice reached out to us about an upcoming opinion research study for Sjogren’s Syndrome patients. The goal is to learn about what it is like to live with Sjogren’s Disease and get your opinion about available treatments.

This will be a 30 minute online survey which you can complete at your leisure. All of your information will be kept confidential and you will be compensated for your time. Patients will receive $50 for providing their opinions.

If you are interested in participating, please sign up at:

To learn more about the non-profit that started your Sjogren’s community:

Feel free to leave any questions or comments below.

Warmest Wishes,

Your Loyal Mods

Altho it doesn’t really matter to me…is the $50 compensation confirmed? I just completed the survey and at the end it stated that IF I qualified I might receive a $5 gift card to either Amazon, Starbucks or Dunkin Donuts (you get to choose) and I chose Amazon.

Anyway…I was just wondering because the $50 could really come in handy for some…

Have a great day!


Hi, Lisa, I’m 99% sure it’s confirmed. If you don’t hear back from the folks at Rare Patient Voice, you can email ■■■■■■■■■■■■■■■■■■■■. If Todd isn’t able to get back to you, you can also email me direclty at ■■■■■■■■■■■■■■■■■■■. Have a wonderful day!!

I was wondering that as well. I signed up and am waiting to hear back but their site says $5….

We’ll help clear this up. Can you email ■■■■■■■■■■■■■■■■■■■■ and let him that you completed the Rare Patient Voice survey ( and when you completed it?