I literally just joined this site a few minutes ago. Today (well, technically yesterday...October 3), I was diagnosed with Sjogren's Disease. But I've been fighting this for a long time. My life has been absolute hell for the past year. There were times I felt like I was dying. My birthday is later this month, and I honestly didn't know if I was even going to make it because of how I was feeling.
I'm sorry this post is so long. I don't even know where to start. My symptoms right now are extreme tiredness (and I mean extreme, like some days I can't even be out for more than 30 minutes or an hour at most and then I have to come home and lay down). I randomly feel dizzy sometimes, all my joints hurt, my feet are freezing cold all the time and my toenails turn purple! I also feel weak, and I have trouble climbing steps. I have a lot of trouble concentrating, like I just can't get my brain to work right, and my short term memory has been absolutely horrible lately. I easily forget things I did earlier in the week, or sometimes even on the same day. I'll forget the name of places that I've been going to for years. Sometimes I forget peoples' names. Then my mouth got really red and irritated, and it started hurting all the time, like I had a sore throat.
I've been fighting this for so long because no one would listen to me! Every doctor I went to kept dismissing my symptoms as "anxiety." I do have problems with depression, but when I kept trying to tell them that this was something different and there was something else going on, they wouldn't listen to me. Even my parents thought I was exaggerating or just telling stories. I fought this for months before a doctor finally decided to order a blood test to check for Rheumatoid Arthritis. I didn't have that, but I was positive for Antinuclear Antibodies. That was kind of the point where some doctors suspected that...gee, maybe something was going on. Other later tests finally showed that I was positive for SSA auto-antibodies.
This has to be the scariest thing I have ever gone through. When you can feel something very seriously wrong with your body, but you have no idea what it is...that's just the scariest thing ever. The past few years have been really bad, just with a lot of things happening in my personal life. It's been one thing after another. But this...this is just something that hit me out of nowhere.
What also drives me crazy is that according to the "statistics" I'm not even supposed to get this! I'm a 36 year old male. And yet on just about every single website I go to, they always say "90 percent of patients with Sjogren's Disease are women." Over and over again. One website even just kept saying "her" throughout the whole article. ANYONE can get this disease, and they really need to stop making it seem as if it's only women. I'm a young male, and I have it...and it has made my life absolutely horrible. But when websites and articles just keep saying about how "mostly women" get it, when you're a male it makes you feel like some kind of a freak when you already feel bad as it is :(
I'm sorry if I was ranting. I guess I'm just feeling so many things at once right now. And on one hand, I feel vindicated because all this time no one was listening to me, and now it's finally proven that I HAVE been sick all this time. But I'm also scared because I don't know what's going to happen to me :(