I am so sorry to hear that your diagnosis is hindering your quality of life. It sounds like you are dealing with an increase in Sjogren’s symptoms, which can be incredibly frustrating and discouraging. Whether you are looking for a platform to share your story or new information about controlling uncomfortable side effects- I hope we can help you find the information you are looking for.
I can see that you have already posted in the community, which is wonderful! I always encourage new members to create their own discussion posts by clicking the + New Topic tab. This is a great way to share your story, ask new questions, and connect with others.
I am so sorry to hear that you are dealing with such awful fatigue. Do you have an appointment scheduled with your doctor in the near future? Have you mentioned this to your doctor in the past?
The fatigue can be awful. Mine has gotten better in general. Now it hits more like a flair up…now everyone knows when I am flailing because its the only time I can sleep during the day.
I hope you find things over time that work for you to help with that.