Nine months ago I was diagnosed with SS. About 4 months ago it was declared Primary SS. Now my rheumy added fibromyalgia as a definite diagnosis as well because I was suffering from chronic burning pain on my limbs and almost non-stop spasms in my face and throughout my body.
I still don't know what some of my symptoms are caused from because by the time I tell him about the ones I think are important and answer all his questions, he is in a hurry to get to the next patient.
The symptoms are:
Dark spots on my face and arms
Less sweating, which you would think I would be grateful for but it actually makes me feel sick.
Little bumps all over my arms and some on my hands and legs, not red, no rings, some flake and they itch
Dark flakey patches on my face, arms and legs
Confusion - I will be talking and completely go blank, I forget what everyday things are called, forget names of people I've known for a long time
Speech : completely wrong words from what I am trying to say come out of my mouth. This and the confusion happen quite often, not just every now and then.
I don't know if any of these are important enough to even mention to the doctor or just things we have to live with.