I've been thru a lot in the past few months, the move, the cancer scare and the surgery.
I just want to learn how to live with the SS and cope. It's overwhelming, because to me, it's unpredictable.
You really don't know if your symptoms are gonna flare from day to day and it makes it hard to make plans. If any.
I take it I have a minor case of primary SS. But I still hurt, and I miss so many things I use to do and I don't know what to expect for the future.
I try not to future think, but I hate being blind sighted by something out of nowhere.
If I have an understanding that 'something' MIGHT occur, at least I can mentally prepare for the event.
It took me 3 mins to remember and finish that last sentence. I just blanked out and the brain fog took over.
That alone is irritating.