Hi there @Beccaboo , and welcome to the Sjogren’s Syndrome patient support board. I’m an intern from BensFriends here to help you get started and share your story with Sjogrens with our community. It sounds like it’s been quite an ordeal for doctors to figure out what’s been going on, but I’m glad you were able to find us!
As with many rare diseases like Sjogren’s, a lot of patients have to go around the medical system and through a few different treatments before an actual diagnosis can be surely made. Our members have seen it all through the patient’s perspective, and we have many more visitors who really appreciate a place to feel like they’re listened to and understood when it comes to their symptoms.
How have you been lately? It’s been some time since you made an account, and I know it can be quite intimidating to get started with a new community, so I’m here to help with anything you need to get started. If you’d have any questions, any comments, or just want to share your story, please feel free to let us know what’s on your mind!
One thing that is super helpful for getting started is just starting with commenting and reading through some of our most recent topics – you can find these on the right of our home page sorted by category and time posted.
Hope that you’ve been doing relatively alright lately, and welcome again to the Sjogren’s Syndrome patient support board!