Good Day Sjogren's Sufferers! Has anyone out there been prescribed Cellcept to treat SS?! If yes, will you share your experiences? And if no, this too is important to know.
Hi Goddess,
I knew I had seen this drug mentioned in a positive light. It was by a member with NS
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001520/
They stated that they had no relapses, and needed no Prednisone for 2 years.
Hi SK,
The problem with this drug is that it has 65 common side effects and it is prescribed to organ transplant patients, so it turns off the autoimmune system. For SS and Lupus, it seems to me, that it's like swallowing a hand grenade to stop SS and Lupus, while it obliterates the whole body. It's a scary drug; I refused to take it. I don't know about NS. Could it really be a better alternative to Prednisone?!
SK said:
Hi Goddess,
I knew I had seen this drug mentioned in a positive light. It was by a member with NS
http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001520/
They stated that they had no relapses, and needed no Prednisone for 2 years.
I cannot tolerate Prednisone, so maybe for someone like me, but not sure. I am sensitive to meds, so I don't know that it would even be prescribed to me. It was one patient who had a positive experience.
I just reread my response, and it may be misinterpreted as being a bit 'huffy', but that was surely not my intention! :)
Thanks for letting us know about all of the side effects, Goddess!
SK,
No, you weren't being "huffy" at all!! You are great at getting the information out there, which gets us all thinking and sharing. What "we" don't know can kill us, literally! We need to help each other and not those doctors who want to sell outrageously expensive drugs that cause a world of harm, in exchange for a pharmaceutical conference in Paris that becomes a free paid vacation for them and their families.
SGoddess…oh my, I couldn’t agree with you more re everything you said:
- SK’s great topics
- The importance of knowledge
- And let’s just say “sending doctor’s to Paris” cough cough