http://www.uptodate.com/contents/methotrexate-induced-lung-injury
Oh wow, I am blown away. I have had bad lung issues before being diagnosed with sjogrens. Yet, my dr only focuses on the rheumatoid arthritis she says I have, but is not a problem for me yet. My pain comes from other issues.this aside, she is constantly trying new medications,one of which was methotrexate, and I immediately developed lung infection after only 2 doses!. I have not yet recovered, and she goes and wants to try another new one, cellcept. I am not feeling comfortable with any of her treatment at this time, and quite frankly, trust none of my drs at this point. After reading this article on methotrexate, and I am positive neither my dr of osteopathy, or my pulmonologist, know how to treat my lung condition, because they are focusing on the wrong conditions. I am presently going through deep depression and anxiety, both diagnosed, and will start therapy this Thursday. Cellcept can cause anxiety. Hello? I am just feeling so lost and alone with my other health issues, like no one understands.thank God for all of you who always have so much to share, and a shoulder to cry on.
I am so sorry you are having such a rough time. When it rains it pours. It is difficult when you do not have faith in your doctors. We put doctors up on a pedestal, and we have always been taught to respect them and treat their word as gold. But as we have seen, sometimes they don't know as much as we give them credit for. They are human, after all, and our illness is not very well understood. Sometimes I think they are as frustrated as we are, and jump us from drug to drug to drug out of desperation, because they are used to being able to help. Since not everyone gets the same side affects, I pray that anxiety will not be one you get from Cellcept, and that your therapy tomorrow will be of some comfort! Hang in there - I am rooting for you!!
gmabuster said:
Oh wow, I am blown away. I have had bad lung issues before being diagnosed with sjogrens. Yet, my dr only focuses on the rheumatoid arthritis she says I have, but is not a problem for me yet. My pain comes from other issues.this aside, she is constantly trying new medications,one of which was methotrexate, and I immediately developed lung infection after only 2 doses!. I have not yet recovered, and she goes and wants to try another new one, cellcept. I am not feeling comfortable with any of her treatment at this time, and quite frankly, trust none of my drs at this point. After reading this article on methotrexate, and I am positive neither my dr of osteopathy, or my pulmonologist, know how to treat my lung condition, because they are focusing on the wrong conditions. I am presently going through deep depression and anxiety, both diagnosed, and will start therapy this Thursday. Cellcept can cause anxiety. Hello? I am just feeling so lost and alone with my other health issues, like no one understands.thank God for all of you who always have so much to share, and a shoulder to cry on.
Dear gmabuster,
I hesitated even putting this up, but this is the place where we 'lay it all out', so after some serious contemplation, I opted to post it!
As much research as I have done on this med, as well as the fact that I was on it for Psoriatic Arthritis, this was unknown to me until yesterday. Considering I was a moderator on that site as well as the Fibro and Lupus site, and many of those members also suffer autoimmune diseases treated by MX, it seems uncanny that this could have eluded me for so long. I was told about this from a patient of BF Myositis community, and googled it immediately.
Unfortunately, until the actual cures are the primary focus, and more holistic care is covered by our insurances, we will continue to be at risk for a variety of at very least unpleasant side effects.
I surely understand your frustration, I'm there too!
Wishing you well,
SK
Please realize that until a cure is accessible, our best bet is still a good Doctor who carefully prescribes us meds!
dear Sk, I am very thankful, and appreciative for all the information you share with us here. not all of us are savvy about where, how, or even if to start to look for answers to questions we have. At this moment, I am beside myself with not knowing who to trust, where to turn. But on the good side, my husband has gotten on board, seeing me so depressed, has changed his way of thinking, and has become a true supportive husband. this helps like nothing else, if you get me. I attend my first real therapy session tomorrow. I am looking forward to getting help, so I can learn how to deal better with my illness. I want to live my life, not just exist in it. But thank you so very much for all your insight. I would like a # to call tho, like you said, to find the right Dr to help. I'm not sure where to start there.
http://www.medicinenet.com/sjogrens_syndrome/riverside-ca_city.htm
Here is a Sjogren's clinic in Riverside, looks like a REAL good place to start! Sounds like your husband may even drive you there! If you decide to call or write for an appointment, ask for the Physician most familiar with Sjogren's, as there may be others in the practice who are more/less knowledgeable!
Thanks for your kind words, but most of the members here have much more actual knowledge and wisdom pertaining to this disease! Though of the 4 groups I have recently taken on to moderate and revive, this is the ONLY disease I have and the one I do know the most of!
Let me know what you think of the Dr link, I can go back and dig deeper... be glad to do it!
BTW, I spoke with a PhD Psychologist about the time all of this hit me, spend about 2 years with her. Her practice promotes resilience, and she did me nothing but good!
Please stay on touch with me!
Wishing you well,
SK