My lips are dry most of the time. But, for the last couple of weeks, I have a whitish colored spot on my bottom lip. It's on the outside. Has anyone heard of anything like this before. I REALLY, REALLY don't want to see another doctor!
I had something like that and I discovered Nivea "A Kiss of Recovery". I've always been a lip product junkie and I have never found something that works like this. I have a tube in my purse, my end table, my nightstand, my makeup drawer and my junk drawer! I live in fear that it will be discontinued. I put it on sporadically through the day, but religiously at bedtime. It did absolute wonders for my dry, cracked, white spotted lips. It is really worth a try, and I hope it helps as much as it did me.
Thank you so much Lovey! I definitily am going to try it for sure. Thanks again
Lovey said:
I had something like that and I discovered Nivea "A Kiss of Recovery". I've always been a lip product junkie and I have never found something that works like this. I have a tube in my purse, my end table, my nightstand, my makeup drawer and my junk drawer! I live in fear that it will be discontinued. I put it on sporadically through the day, but religiously at bedtime. It did absolute wonders for my dry, cracked, white spotted lips. It is really worth a try, and I hope it helps as much as it did me.
I'm a Blistex fiend! My lips have ALWAYS been dry, cracked, bleeding, and this doesn't have that thick wax of some of the products.
As for the white spot, don't know, but surely keep an eye on it, and maybe take a pic, show it to the first Dr you see!
Lovey said:
I had something like that and I discovered Nivea "A Kiss of Recovery". I've always been a lip product junkie and I have never found something that works like this. I have a tube in my purse, my end table, my nightstand, my makeup drawer and my junk drawer! I live in fear that it will be discontinued. I put it on sporadically through the day, but religiously at bedtime. It did absolute wonders for my dry, cracked, white spotted lips. It is really worth a try, and I hope it helps as much as it did me.
Sounds like all of us have very kissable lips! HA! My lips were dry, cracked, peely & bleedy especially during the cold wintery months. I have tried so many different lip products which worked for a bit, but always made my lips feel awful until I discovered " extra virgin coconut oil." It takes just a small amount & does not make my lips feel icky. In fact, I use it on my face right after I shower, on my hands or sometimes all over my body. It's natural, has a pleasant aroma which will make your love want to kiss you even more. And I find I can kinda smile now, cause it even hurt to smile.
I use it now to saute onions, etc.and am into Paleo cooking which I know has made my mouth feel better as well. Please try this my friends!
PS~~It is not liquid as in olive oil. Can be found in super markets or health food stores.
I use this on my grand kids for psoriasis, my mom uses it for dry skin after showers and I do sometimes use it on my skin and lips. Never cooked with it though. I use organic expeller canola by spectrum. I may have to give it a try. Have you tried the coconut water with pineapple juice? It’s delicious!
I use a product I found on Amazon called Dr. Dan’s CortiBalm. My lips crack in the corners and bleed, and I too have white patches. Mine are on the inside of my bottom lip though. Dr. Dan’s is great stuff if you want to give it a try. Hope this helps.
Sonya
Vitiglio? I am just guessing. I know we can lose pigment. And I would still see the doctor because even though it may just be the weird skin discolorations of aging, and nothing to do with SS, it could be something else like skin cancer or something we simply have not uncovered, personally, yet with SS. I know you don't want to see another doctor. I totally do not blame you, but you and your health are important.
Wow....I'm finding myself checking into this board so often as there is always so much good info and support going on. It's pretty amazing.
That being said, I get little white spots on the inside of my lip often now...that only started within the last year. I had no idea what it was. They come and go but it makes sense if it's part of the inflammation bit. Most times there is only a couple but I've had moments were there was a ton of them. It freaked me out a bit. They don't hurt or anything else and they do go away, but how odd when it's happening.
Thanks again everyone for making me feel normal about all the weird things the body is doing.
Kaz,
Thank you so much for the info. Its probably the clearest explanation I've gotten on that. Especially the relationship to Vit D levels. I guess these are also the reminders that we need to advocate for ourselves as far as having these things tested.
Yes indeed about flax seed! I have a smoothie every morning that had flax seed in it.. It's pretty good too. I usually use almond mill, put in in a blender and then TA DA. I take flax seed oil capsule too.
Kaz said:
If any persist get them looked at. Also have you had your vitamin D levels checked? It is important to have your blood levels at around 150nmols for optimal immune regulatory response when one has an autoimmune disease.
It also helps reduce inflammation, as does Flaxseed oil. There was actually some recent research out on Flaxseed oil demonstrating it slows progression of MS down. Something I have been advocating for many years now as Flaxseed helps to reduce inflammation, so it is worthwhile taking it.
It also helps with moisture of the eyes too. That I found out from trial and error around 8 or so years ago. ;-) I take 6grams daily and then take 10grams if I feel a relapse coming on. However, it needs to be noted one should not take this if they have any bleeding disorders, or on medications that thin the blood (antiplatelets or anticoagulants), this includes regular aspirin and NSAIDs without checking with your GPs.
With vitamin D, get your levels checked and then if you want to work out how much you need to take to get to optimal levels, the equation is for every 1,000 iu of vitamin D3 (never take D2) equals approx. 25 nmols in the blood. So if you level was 70, taking 4,000 iu should get you to the 150nmols.
Research has shown now a direct correlation between lower levels of vitamin D and disease activity in autoimmune diseases, and that during periods of relapses the levels plummet lower. That relapses can often occur after winter periods, or during them depending on levels. With MS Spring time is the highest relapse period and it is directly related to levels of vitamin D. A lot of research has also been undertaken for Lupus and other autoimmune diseases in regard to vitamin D as well and found it plays a role in relapses too.