I've had Sjogren's since 2008 but didn't get diagnosed until 2013. I'm simply miserable with this disease and the medications used to treat the symptoms. Have to somehow go to an appointment in half an hour with the usual upset stomach, but just wanted to say hello and also ask, Have any of you had to serve on a jury since your diagnosis and treatment began? How do you handle it?
Sjohell, I'm sorry you are dealing with all of this. People here do get it though. I hadn't even thought of being called to jury duty. Ugh....its tedious under the best of circumstances. LOL. I have a doc appt this Friday sssooo I think I'm going to ask him about that just because it really is difficult for us in a lot of ways.
I have worried about it too. I used to get the initial letters. In our county, they send a mailing and then you call on a specific day and enter the code from your letter. Then the recording tells you if you're called. Anyway, I haven't even gotten a letter in years! I'd love to serve on my good days, but I never know when those are going to be. Luckily, I've been ith my doc near 20 years and used to work with their office in professional capacity, so I'm sure I could just call for a letter.
Back to the most important point, Sjohell, what meds are you taking that are causing all of the problems?
My dr. Gave me a note, they approved it so I didn’t have to served, it has to explain why you can’t serve for medical or phyical problems.
Sjohell,
I know exactly what you feel like except I don't have the diagnosis yet, but I needed people to talk to that understood what i'm going through and here is where I find it. Can I ask if you have lockjaw? Where your jaw cracks? I was getting constant ear aches and my jaw was hurting from my neck to my ears, was also getting a lot of vertigo to where I couldn't go to work and the doctors just kept pushing pills at me, went to the dentist and she fitted me for a mouth guard. It took some time to get used to and I almost gave up, but so glad I didn't. I have not had a horrible ear ache in a couple of months. I also grind my teeth at night and when I don't wear it I wake up and have to put it in cause I can tell I'm doing it. It was nice to take one thing off of my list.
Cevimeline and Plaquenl.
GrumpyCat said:
I have worried about it too. I used to get the initial letters. In our county, they send a mailing and then you call on a specific day and enter the code from your letter. Then the recording tells you if you're called. Anyway, I haven't even gotten a letter in years! I'd love to serve on my good days, but I never know when those are going to be. Luckily, I've been ith my doc near 20 years and used to work with their office in professional capacity, so I'm sure I could just call for a letter.
Back to the most important point, Sjohell, what meds are you taking that are causing all of the problems?
I had the the same thing with all of the pills and treatments. From the beginning my first rheum. prescribed ranitidine (zantac). There are lottsa acid reducer/controller OTC meds available and they're reasonable at costco. I take it 1/2 hr. before taking my pills. You can take a very high dose of Zantac (Rx only or double up on the dose available OTC. But, talk to your doc, first. These days, I also have to take pills while I'm eating.
Sjohell said:
I'm having trouble following the format here but hope I replied correctly. I'm on Plaquenl and Cevimeline and both make me tired and have to be taken with food. Aside from that there is very little that I can eat these days that doesn't upset my stomach. I also grind my teeth at night and have a night guard, have positional vertigo, and often get migraines with neck pain. Fatigue and gastrointestinal symptoms are what make this disease so ridiculous for me, and there's a deep depression as well. Exercise helps tremendously but I find it almost impossible to get myself to the activity most days.
Hi,
I have many days I never leave home. .IF I sleep thru the night and don’t take a pain pill I wake up in horrible pain. I would love a pain patch that would get me through but my doctor just refuses to do it…
I have had TMJ for years and dental work is like torture tome. Five years ago I had all this expensive dental work and within two years my teeth died and it just fell out.
Many times by the time I get dressed I’m too tired to leave the house.
Autoimmune diseases are so painful and normal people just don’t get it.
I have to say that there is hope… I haven't had to take one of the famous fatigue naps in a long time. It used to be so bad that it was a regular thing for months at a time to barely make the drive home from work & pass out on the couch hard. Now its a big deal when I fall asleep during the day, thankfully. It makes such a difference once they get the meds right.
Good Morning,
It is so amazing that so little research has been given to all the autoimmune diseases which cause so much pain and suffering.this morning I slept all night but woke up in so much pain that I took a nucenta and just lay in bed not moving and waiting for my medication to work.
Nucenta is a narcotic pain medication which lasts from 5-6 hours. If I sleep 7 hours I end up in terrible pain.
Just want to give a positive update from my original post. I started taking probiotics and eliminating a few more things from my diet and the worst of the "stomach problems" are gone now. Probiotics are a miracle drug! Thank you to all who've welcomed me here. I don't check in often because it makes me feel even worse to talk about this condition, but it's also fantastic to be able to communicate with others who have Sjogren's.