Prognosis part 2 vasculitis

Well you know the drill. This is dry I suspect but I love numbers.....

How to predict Vasculitis with Sjögren’s

In the previous article it was stated that 9% of SS patients but that was with a particular set of variables So in the course of your diagnoses there are a number of tests and other evaluations done.

In an extensive study a large group of patients with a average age at the onset of sicca symptoms of 54.7 yrs, an average age at the time of diagnosis of 56.9 yrs and a total follow-up of 2303 patient-yrs (average 8.66 yrs/patient), the following was determined

If you have Parotid scintigraphy grades III or IV, it means you are 4 times more likely to have vasculitis than someone with SS who has a lower Parotid scintigraphy. The prediction will only be wrong 2 times out of a hundred.

If you have Systemic involvement, you are 3 times times more likely to have vasculitis than someone with SS who does not. The prediction will only be wrong 7 times out of a thousand.

If you have Anti-Ro/La antibodies. You are 2 times more likely to have vasculitis than someone with SS who does not. . The prediction will only be wrong 5 times out of a hundred.

If your RF ≥ 25 UI/L You are 2.3 times more likely to have vasculitis than someone with SS who ratio is less. The prediction is virtually unlikely to be wrong..

If your C3 levels <0.82 g/l You are 4 times more likely to have vasculitis than someone with SS who ratio is less. The prediction will only be wrong 3.4 times out of a hundred.

If your C4 levels <0.11 g/l You are 7.5 times more likely to have vasculitis than someone with higher C4 values, with virtually no chance of the prediction being wrong

If you have Cryoglobulins You are 5.4 times more likely to have vasculitis than someone who does not, with virtually no chance of the prediction being wrong

Just because I like numbers this is where the conclusions above came from. Univariate Cox regression analysis identified the following variables at diagnosis associated with the development of vasculitis:

  1. Parotid scintigraphy grades III or IV with a Hazard ratio of 4.03, P = 0.025
  2. Systemic involvement with a Hazard ratio of 3.01, P = 0.007
  3. Anti-Ro/La antibodies with a Hazard ratio of 2.21 P = 0.049
  4. RF ≥ 25 UI/L with a Hazard ratio of 2.37 P = 0.034
  5. C3 levels <0.82 g/l with a Hazard ratio 4.05 P = 0.012
  6. C4 levels <0.11 g/l with a Hazard ratio HR 7.53 P < 0.001
  7. Cryoglobulins with a Hazard ratio 5.44 P < 0.001

Clear as mud right? A hazard ratio means how likely something is to happen 1 means that chances are the same a ration of 4 means it happens 4 times more often. A p value is how likely it is to be wrong. Because they are Univariates it means that whether you have one are all seven you are no more likely to get Vasculitis

The first set of numbers called univariates are all independent of each other meaning whether you have one or all of them, your chance of getting vasculitis are only as high as the highest hazard ratio.

Vasculitis involved the peripheral nerves in 68% of patients, the skin in 52%, kidneys in 12%, small bowel in 8% and pancreas in 4%. When a biopsy specimen was obtained, the main histological diagnosis was small-vessel vasculitis in 80% (leucocytoclastic in 70% and lymphocytic in 10%) and medium-sized vessel vasculitis (necrotizing vasculitis) in the remaining 20%.

I like the way you explained it and laid it out. I'm an MHC because I can't do numbers, LOL. I think its good and clear.

If I were a member.....

I would probably want to stop reading at "Just because I like numbers..." and pick up again at "Vasculitis involved."

If we can keep it shorter, we will get more readers. I think we also need to reinforce the key message here, which most will not get. To me, the key message is: "Most of you on this community will not experience vasculitis. But since a few of you may, these indicators will help you know whether you might be "one of the few." Even if you have these indicators, chances are that you will not develop vasculitis. Don't let this information worry you. It is here just for awareness for the small subset of you who have an elevated risk." Feel free to rephrase. Could this be the first paragraph? I will also do a cut and paste for edits.

How to predict Vasculitis with Sjögren’s

Most of you on this community will not experience vasculitis. But since a few of you may, the indicators below will help you know whether you might be "one of the few." Even if you have these indicators, chances are that you will not develop vasculitis. Don't let this information worry you. It is here just for awareness for the small subset of you who have an elevated risk.

In the previous article, it was stated that 9% of SS patients will develop vasculitis, but that was with a particular set of variables. So in the course of your diagnosis, a number of tests and other evaluations should be performed.

In an extensive study of a large group of patients with an average age of 54.7 yrs at the onset of sicca symptoms, an average age of 56.9 yrs at the time of diagnosis, and a total follow-up of an average of 8.66 yrs/patient (2303 patient-yrs), these were the findings:

If you have Parotid scintigraphy grades III or IV, it means you are 4 times more likely to have vasculitis than someone with SS who has a lower Parotid scintigraphy. (This prediction is 98% accurate.)

If you have Systemic involvement, you are 3 times more likely to have vasculitis than someone with SS who does not have systemic involvement. (This prediction is 99.3% accurate.)

If you have Anti-Ro/La antibodies, you are 2 times more likely to have vasculitis than someone with SS who does not have Anti-Ro/La antibodies. (This prediction is 95% accurate.)

If your RF ≥ 25 UI/L, you are 2.3 times more likely to have vasculitis than someone with SS whose ratio is less. (This prediction is 99.9% accurate.) What is RF?

If your C3 levels <0.82 g/l, you are 4 times more likely to have vasculitis than someone with SS whose ratio is less. (This prediction is 96.6% accurate.) What is C3?

If your C4 levels <0.11 g/l, you are 7.5 times more likely to have vasculitis than someone with higher C4 values. (This prediction is 99.9% accurate.) What is C4?

If you have Cryoglobulins, you are 5.4 times more likely to have vasculitis than someone who does not. (This prediction is 99.9% accurate.) What are cryoglobulins?


Vasculitis involved the peripheral nerves in 68% of patients, the skin in 52%, kidneys in 12%, small bowel in 8%, and pancreas in 4%. When a biopsy was obtained, the main histological diagnosis was small-vessel vasculitis in 80% (leucocytoclastic in 70% and lymphocytic in 10%) and medium-sized vessel vasculitis (necrotizing vasculitis) in the remaining 20%.

Note: For those who like numbers, this is how these conclusions were reached. Univariate Cox regression analysis identified the following variables at diagnosis associated with the development of vasculitis:

  1. Parotid scintigraphy grades III or IV with a Hazard ratio of 4.03, P = 0.025
  2. Systemic involvement with a Hazard ratio of 3.01, P = 0.007
  3. Anti-Ro/La antibodies with a Hazard ratio of 2.21 P = 0.049
  4. RF ≥ 25 UI/L with a Hazard ratio of 2.37 P = 0.034
  5. C3 levels <0.82 g/l with a Hazard ratio 4.05 P = 0.012
  6. C4 levels <0.11 g/l with a Hazard ratio HR 7.53 P < 0.001
  7. Cryoglobulins with a Hazard ratio 5.44 P < 0.001

A hazard ratio means how likely something is to happen. A ratio of 1 means that chances are the same, while a ratio of 4 means it happens 4 times more often. A p value is how likely it is to be wrong. Because they are Univariates, it means that whether you have one are all seven, having more indicators does not continue to increase your chances of getting Vasculitis. The indicator with the highest chance (if you had all indicators, it would be C4 levels) represents your personal chance of developing vasculitis compared to those who do not have the indicators.

Check my edited version for accuracy, tj, as I may have gotten some parts wrong.

The dry sentence was for you all. I see yoy did some math too. Heres the think say you have cyroglobins. If there were a hundred marbles in a bucket, and some of them were red and and thecrest white you had to draw one. If it was red you got vascilitis and if itvwere white you did not. 9 of those marbles were red to begin with. Now because of the cyroglobins 45 are red. It sounds worse than it is. You are still holding the house advantage of a Las Vegas casino.

dancermom said:

If I were a member.....

I would probably want to stop reading at "Just because I like numbers..." and pick up again at "Vasculitis involved."

If we can keep it shorter, we will get more readers. I think we also need to reinforce the key message here, which most will not get. To me, the key message is: "Most of you on this community will not experience vasculitis. But since a few of you may, these indicators will help you know whether you might be "one of the few." Even if you have these indicators, chances are that you will not develop vasculitis. Don't let this information worry you. It is here just for awareness for the small subset of you who have an elevated risk." Feel free to rephrase. Could this be the first paragraph? I will also do a cut and paste for edits.

My education is getting more well-rounded all the time...

I was thinking a seperate article for all thec"tests" to keep it short, but I see your point

I am learning alot.