Sjogrens Diagnosis

[Berrie]

I had to go to a university hospital to be diagnosed after suffering 3 years. The doctor there told me she was giving me a clinical diagnosis ecause over 52% of the time the tests don't show anything. I have been so sick with dry eyes(like sand in my eyes). I had punctual plugs put in, take Restasis and Evoxac which gives me some relief but I still have some eye problems. I started having my head itch in one spot behing my right ear about 2 years ago. Used 23 prescription meds., xtract treatment and now I have been having some prednisone shots which have helped more than anything. The doctor says it is a nerve problem more than a dermatitis problem. He is gong to do a permaneant never block after getting approval from my insurance. My vaginal area itches horribly. I have had hormone replacement, lidocaine 5%, and so many salves I don't have the time to mention. I have had a vulvar nerve block to no avail and a second nerve block that the name slips my mind. I cannot seem to find a rheumy in this town who knows much about SS. They try to give me pain meds. which only dry my eyes out worse and I am not showing any markers for SS so the last rheumy I saw acted like everything looked great and I wanted to say "well, that means I am feeling great". but I chose not to say anything.How many of you have SS with no markers. I know I am in the majority. I forgot to mention I am on Lyrica 150 and 300.