I guess im one of the few males around well, I’m 50 and my story started probably 5 or 6 years ago but in the last 18 months I’ve been having monthly episodes that I call my period. I’m in Miami with access to excellent care but this sjogrens things is not to popular around and so far no one has made a diagnosis.
Please note that I tested once + in the Ana, re test was - but the SSa is always positive tested maybe 8 times in the last 18 months always +. Thiroid has been in sea saw mode. My symptoms are strange but what makes it weird is that they happen like a period every month at the end of the month by the way I’m expecting my flair up anytime now must likely tomorrow. Sorry… Back to symptoms , the episodes are every 1/2 hour peak during day hours
Dry skin in elbows( no#1 sign )
Rash on extremities
Pain left leg and left foot( burning)
Pain right hand/Forearm
Cold sweats during episode
Swallowing/Difficulty speaking… Stuttering
cant move during episodes
It’s like my self exits my body
Urge to go haven’t happened but I have no control.
I really think one day I won’t come out of those episodes.
Involuntary twitching while sleeping
Rheumatologist referred me to neurologist and place me on Keppra which I haven’t start taking. Nobody can’t explain why this happens every month like a period.
Sometime I think I’m just loosing it!
If anyone knows a good MD in the State of Florida please let me know.
Many thanks for reading
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