Just diagnosed with this and looking for help. So many symptoms it’s depressing. My eyes are the worst. Any suggestions? I’m already using systane, refresh pm and refresh throughout the day. Also eye vitamins. Any and all help would be appreciated

Hi Kristi! Welcome! My eyes were very suddenly, very awful, when I was diagnosed. So was my mouth actually. Okay fine, both.

If you haven’t already been to the eye doctor, I think it might be time. It’s important that we have a tear film in order to make sure that the surface isn’t dry. They may put you on prescription drops like restasis or xiidra to help with tear production. You also may want to consider using preservative free drops, since you’re using a lot of rewetting drops. Personally, I’ve used the pm lubricant gel with a lot of success overnight. What ultimately made a huge difference for me was tear duct plugs.

Another thing is warm compresses, once a day. It can help with maintaining a tear film. Definitely take some time to read around. I’m here generally once a day, although it looks like I missed this initially. Sorry about that.

I second seeing an eye doc. I am on restasis and can say it helps. It helps prevent damage in the long term
Please let us know how it goes!

Thank you for replying. I’m seeing the eye doc again next week to discuss the treatment she currently has me on. OTC products. I really don’t see much of a difference with these. It may be a tiny bit better but every day is different. Some days really bad, others ok. I guess I just have to get used to living on a day by day symptom management. It seems every day I find another symptom that I have is related to thus diagnosis. Ugh. I’m glad there is a support group though so I know I’m not alone. Thanks again