Liz, thank you for your reply and info. I've looked up etd. Read about it on WebMD. I'm going to assume that is not my issue, I'm sorry you are having to deal with it. Has it resolved? I've seen ent and audiologist...and don't have the symptoms most of the time of "fullness"; my hearing test came out excellent. The ringing is very loud though. I am now on 700mg gabapentin. I haven't related it to my tinititus, though it could be an issue. My pt just did some work on me on thurs to reset my vestibular system which she thought may directly reduce the ringing(least of my issues, and something I don't have a problem living with, its all the other symptoms!!!) anyway, it made the ringing worse! I have /FLUTICASONE PROPIONATE that I use for my allergies, I think it may be the same as your dymista. I have trouble with my eyes and nasal passages being completely dry! I've been waking up in the night with eyepain from the dryness. Just using generic lubricating eyedrops, occasionally pataday eye drops, and my own misxture of saline spray for my nose/throat.
What I've found out since this posting is that I have a diagnosis of Vestibular Dysfunction. I found a physical therapist that is working with me, and found out is has been caused by medications. She explained my particular issue is systemic from the meds and whatever else is going on physiologically. It is more difficult for her to treat because there are so many factors with my system, unlike many other vestibular cases that she has worked on that have one main cause, such as trauma or dysfunction of inner ear or eye only.
The gabapentin has cause some dizziness in the past, though it is much different than wheat I am experiencing now. It was such a relief to find this therapist who has dealt with issues like I have been experiencing. She explained that there is a whole host of crazy issues that occur from this dysfunction of the ocular nervous system, as well as my body trying to reregulate itself from the meds I was on. A lot of damage has been done, and it has been a long long year that I have been struggling with on the most extreme level of challenge. I am glad to say that slowly I am getting better, and experience phases of symptoms in waves. They seem to last weeks to months.
I have also met someone since my posting that has explained to me his experience with severe medication issues, both from a professional perspective hearing from patients, and from his own personal experience. He also confirmed what I had heard and read that it often takes a year for the body to reregulate to a better place. The symptoms and experience feel devastating, and I guess can...I won't go there right now in my note.
It has given me comfort to know what is going on, and I haven't learned it from the dozen or more doctors that I have seen. It has come from physical therapists, and others who have experienced issues first hand. I have been very persistent and am glad I know a little more now, enough to have therapy. I was told that without intervention, there would be no improvement of my devastating symptoms. I still worry that too many things are going on, that the therapy insurance will run out before I am recovered, that my body won't regulate enough for a full recovery because too many other issues are connected,,, that the process is going to go on so long that my life as it is won't be able to sustain my illness...it has just been a long haul of years of trials with meds. I thought they were improving my life, but looking back, perhaps in the very short term, but then the side effects were probably worse than the disease. Hard to tell, but I am now with recommendation from docs, trying to establish a baseline again. Oh, yes, I was initially told by medical community that baseline would be established in a number of weeks....ha! dig deeper and you find out that it can take a year or more for many people.
If you are still reading, I was very interested in your experience with naturopath. That is something that I have been considering. I don't know if there are any that are worth there salt that take insurance, or worth the sacrifice of coming up with cash. Someone found me a program using oral supplements that has helped with some of the symptoms.I may be doing all that I can for my body, and the rest is a matter of time and patience. I have been learning much more to have patience, but really struggle with my suffering. I'm so hypersensitive to others suffering right now, I'm overloaded! Its not just my suffering I'm carrying, but others as well. It is so strange.
How did you find your Naturopath? Does you N have any resources that could help find a top one in the Athens/Atlanta Ga general geographic area? I am especially interest in your note:
I used have tummy troubles but better now that I switched to antiimmflamatory diet. I go to a naturopath and she is helping me with diet changes as well as supplements. My energy is better less muscle pain or fatigue and less flares.
Would you tell me more about your experiences with this? Thanks