Qadosh
You must be so miserable when it gets to the point that you don’t care what they need to do to get a line. I am so sorry to hear that and I pray you find relief soon.
Yes, It is so difficult not to be able to breathe...Every time I move I lose my breath and there is always the knowledge that one of these times I will not be able to get to my nebulizer in time and that will be the end of me. I don't know which is worse: dying or not living due to my breathlessness
Thank you for your concern Cassi.. I've been through stuff like this before and worse....and I'm still here alive and kickin..
Its been a few days since you've posted here so a bit concerned. Was hoping for an update. Still praying for relief and recovery.
You are, of course, in my prayers. It stinks, this whole struggling business. I hate that you have to, but that is, as it is. Back to my original point, it just stinks.
Qadosh2him said:
Thanks Lori,
They have decided to put a PICC line in today...I have a feeling it will become a central line as my peripheral veins are all used up by former PICCs. I don't care what they do, They just need to be able to give me the meds.I know if they were to send me home I would not last long. My breathing has gotten so bad.
Hi all,
I'm sorry for not writing...there hasn't been much to say..I'm still in the hospital. Initially they were talking about my going home tomorrow, but today the doctor said"no, not yet. So I'm thinking maybe on Wednesday. Today I took the first shower that I've had in a week. I started to wheeze halfway through and then got breathless. I made it out before I collapsed and then had a breathing treatment. So that was discouraging...that's
Exactly how I was before I was Admitted...so I have to wonder if maybe I will not progress any farther. I'm waiting on a test that was ordered last Friday...but with the holiday weekend,it got pushed to the side.This test will show them whether I need to wear oxygen all the time. I hope I do not. I don't want to thi no I will never progress any further. If I swear
O not get better, it will have the result of making me even more stuck in the house. And I'm so upset as the grocery store I was using appArently stopped delivering...which is terrible news...i really relied on them.
..
I am sorry you are still in the hospital. Hopefully you will not have to wear oxygen full time. When they brought my moms they brought one she could take out with her. It is small and once she got used to it their has not been a problem. See if they will send you home with home health i know some of the compinies have people that will go to the grocery and pick things up I will be thinking of you
Two pieces of good news:
1)It was a computer glitch that caused the trouble with the grocery store delivery. They still deliver and I was able to put in an order (it had saved the one I put in the other day)
2) I passed the O2 test...My SAT went down to 92 (this was immediately following a breathing treatment so may not be practically this good of a reading)...Ijust have to take things a little at a time.I have to sit and catch my breath after any kind of exertion and often will need to use the nebulizer and O2 until I recover. I don't want to live like that.It's horrible....I like to move quickly and now I simply can't. Anyway. I don't need O2 portably....I already have the concentrator and Bipap and canula for night time and times when I just really need the O2.
Thanks for the notes and the kind thoughts in my direction. I do not know yet if I am going home today or tomorrow.Today is my daughter's 22 birthday so It would be nice to surprise her and show up at home. She was disappointed when I told her yesterday that I would not be there.
Hi Cynthia,
Hope all goes well and that you are able to be with your daughter on her b-day! Seems we are constantly in need of adjustments to our needs, dos and don'ts. Hope it will be easier than you think!
I'm having a party for my mom this sunday, so am trying to start the list writing for all of the to do things. Still working on the switch out of summer and winter clothes from downstairs to upstairs, and need to find a day without thunderstorms to get the porch and deck furniture cleaned up, get all the cushions together. Hopefully the hubs will help with power washer, this will save me much time and effort!
I've decided to order a cake from the grocery store, I'm not much on baking, so it will be one less thing for me to do!
Finally stopped procrastinating the retina exam and made the appt, now need an exam for glasses for DL renewal! I cannot tell you how much I dislike deadlines!
Take good care of yourself, my friend!
Wishing you well,
SK