I'm not sure if it is a good thing that only two of my conditions have made it to Ben's Friends. I have Sjogren's, Fibromyalgia, Hashimoto's and Dysautonomia. There is a fibro group but I believe that is more to give support then for it be a rare disease.
Dealing with multiple diseases that all have pain, fatigue and brain fog as symptoms is no fun. Then add in random panic attacks or heart problems with the dysautonomia and life is grand. The rheumatologist has just tested me for CVID (Common Variable Immunodeficiency). It is called common but not because it is.
This I guess is just a rant. I have had to quit my two day a week job which gave me a little normalcy because I have such a low immune system. And the new meds make it even lower to try and bring the Sjogren's into remission. I am looking to find a new normal.