Hello, I have to ask you girls(and guys) does anyone else feel like their lower intestines are swollen and painful? This is a daily thing for me, and starts when my body is getting near bathroom time, and then this discomfort continues for at least two or three hours after going to the bathroom. Sometimes it hurts so bad and also sometimes I just cant go for a day or two, when this happens it can get pretty horrible. . .
While Im on that area, I sometimes have pains in the muscles? at the pubic bone that radiates up toward the belly. I described to a friend and she said it sounds similar to labor pains . . .? This only happens once in a while but I had a bad spell for about a week ending maybe two weeks ago.
I am awaiting Medical Confirmation for Sjogrens and Scleroderma. I guess it's one of those?
Are you talking about urination or bowel movements. Because if its urination it could have something to do with your kidneys either way this isn’t normal. If your are talking about bowel movements I have to take stool softeners daily as some of my medications make me constipated. Good luck I hope they figure it out.
Hi ingeniousfool, I am having an absolute crap year. It started on the 9th April, when I was taken to ED by ambulance, I was diagnosed with diverticulitis given antibiotics and pain meds and sent home. Two days later was back with sever lower abdominal pain and admitted, a few days later an ultra sound showed a mass on my left ovary. The Dr's focused then on this and a few weeks later I had surgery to remove the mass, ovary and fallopian tubes, the right ovary was left and I had a previous hysterectomy. After my discharge the pain continued to get worse, 4 admissions later, and several ultra sounds and CT Scans the focus finally went back to Diverticulitis and a fistula that had formed between the bowel and vagina. I had emergency surgery 12 days ago where the diseased part of my bowel was removed and a stoma and colostomy bag put in place. Luckily this will only be for 4-5 months while the bowel heals and then will be reversed. I will likely be on laxol for the rest of my life. My point is any abdominal pain needs to be checked out thoroughly by a Dr, and keep pushing until you get answers. Best of luck.
That sounds exactly like what I experience about once or twice a week. My whole lower gut area is just SORE. I thought it might be the Ibuprofen that I take sometimes for the Interstitial Cystitis, so I stopped that, but still have it. After a BM it feels like my RECTUM is sore and I have to go sit on the toilet a few times afterward just to be sure I don't pass something unexpected. Such a nuisance!! My Bentyl for the colon cramping helps the immediate discomfort but it makes me not "go" for a couple of days, then the problem starts all over again. So I try not to take the Bentyl unless I am in bad pain. GI dr. says it is not my ulcerative colitis flaring and he thinks it is inflammation from the Sjogren's. I am going to a new rheumatologist in OKC soon and will see if she can offer any suggestions.
I have upper gastrointestinal discomfort and lots of gas. Yesterday I had an upper GI endoscopy and the Dr. who performed it told me there was a lot of fluid in my esophagus which she attributed to my Sjogren's. I had told her before the procedure that I had Sjogren's and thought my esophagus might be dry. Instead, it was the opposite. I guess it's like your eyes tearing when they are dry. Jaycee
I don't know why but I am always amazed at how much I learn from reading these posts. I have so many GI problems also. Horrid gas all the time, I no longer have any muscle tone in my rectum, going is traumatic no matter how many times a day and leaves me terribly worn out. In order to urinate I have to have a BM first usually, etc, etc and NO specialist has been able to tell me why. I ask them: could it be SS or SLE?" They have no idea. I am still looking for a rheumatologist and I am seriously considering one a 100 miles away which is more doable then the 225 miles I am traveling to see my former internist. I truly understand everyones frustration here. There are so few of us that mention having a good doctor(s) to help us.
I was recently diagnosed with several gastro diseases. I felt my stomach was swollen and inflamed all of the time. I had horrible gnawing pain at the top of my stomach. After having a esophageal xray, endoscopy and colonoscopy it was discovered I had chronic gastritis, GERD, esophageal motility disorder, hiatal hernia, Barretts esophagus, and diverticular disease. Early on I did not have a doctor who listened but finally now I do and she doesn't mind testing me for every complaint I have.
Keep searching for a doctors who will listen to you. I have been through many doctors in the last three years and thankfully I have finally found a good team.
misslynne you have described everything I have except DD. My pain is intense and goes to my back. I get nauses and throw up which looks like bile. I'm thinking it's my pancreas. I have an appt with my GI in a week hopefully he schedules me for an endoscopy. So grateful for this group!! misslynne said:
I was recently diagnosed with several gastro diseases. I felt my stomach was swollen and inflamed all of the time. I had horrible gnawing pain at the top of my stomach. After having a esophageal xray, endoscopy and colonoscopy it was discovered I had chronic gastritis, GERD, esophageal motility disorder, hiatal hernia, Barretts esophagus, and diverticular disease. Early on I did not have a doctor who listened but finally now I do and she doesn't mind testing me for every complaint I have.
Keep searching for a doctors who will listen to you. I have been through many doctors in the last three years and thankfully I have finally found a good team.
Okay, so its been awhile since I last posted. My colostomy was reversed in October, during the procedure they discovered my right ovary was enlarged and full of bleeding cysts, so they removed that and my tubes as well. That put me straight into menopause, I was one of the lucky ones with no symptoms, but still they tried pushing HRT witch I refused. I was pretty good for a few months, then had another episode in Jan. A CT showed a mass on my left ovary. At my next clinic apt the Dr told me this and I looked at him and laughed, I said to him I don't have any ovaries. By this stage I was in chronic pain all the time, but they said I was probably a haematoma and would go away on it's own. Dr then gave me a steroid injection in the lower abdomen and told me if I have any more problems go to my GP. April 1st I went to my GP in so much pain I was crying, she rang the radiologist who said I had to be admitted straight away and have another CT, so off to the hospital I went. I was in hospital for 3 weeks with several different diagnosis. Finally this thing was drained via a needle through the back, this has done little to relive the pain and nausea. The 1st Dr I saw (mine was away on holiday) said I had another fistula and would need a permanent colostomy, I am okay with as I was symptom free while I had the first one. This Dr didn't want to step on any ones toes, so waited for my Dr to return and discuss with him, my Dr said he didn't believe there is a fistula and said no. I kept asking I my sjogrens could be causing all this, they keep saying no as Sjogren is dry mouth and eyes. I keep telling them no it's not and they should do some research. I was discharged with a repeat CT in 4 weeks and follow up apt in 5 weeks. Meanwhile I am on gabapentin and slow release tramadol for the pain and still living in limbo.